Staff

Our dedicated staff is made of passionate individuals who are here to help in any way we can. Please feel free to reach out to us directly.

Jenna Heilman
Executive Director
jenna@hdyo.org

Matt Ellison
Project Coordinator and Founder
matt@hdyo.org

Rebecca Mason
JOIN HD Study Coordinator, Juvenile Onset Huntington’s Disease Registry
rebecca@hdyo.org

Jenna Shea
Project Coordinator
jen@hdyo.org

Board

You can learn more about the board on our biographies page.

Hayley Hubberstey
Executive Board, European Chair
hayley@hdyo.org

Seth Rotberg
Advocacy Chair
seth.rotberg@hdyo.org 

Rudolf H Schaffrath
Executive Board, Treasurer
rudolf.schaffrath@hdyo.org 

Eric Miller
Executive Board, Corporate Fundraising
eric@hdyo.org

Dr. Bonnie Hennig-Trestman
Research Committee Co-chair
DrBonnie@hdyo.org

Dr. Lauren Byrne
Research Committee Co-chair
Impacted by HD
lauren@hdyo.org

Clare Braithwaite
Marketing Committee Chair
Impacted by HD
clare@hdyo.org

Donna Spencer
Education Committee Co-chair
Impacted by HD
donna@hdyo.org

Ashley Clarke
Education Committee Co-chair
Impacted by HD
ashley@hdyo.org

Jenny Harte
Marketing Committee
jenny@hdyo.org

Committee Members

Research Committee

Misty Daniel
Certified Clinical Research Coordinator, Scripps Health

Dr. Beth Ann Griffin
Senior Statistician, RAND Center for Causal Inference

Mustafa Mehkary
PhD Student, University of Toronto

Marina Papoutsi
Biomarker scientist, IXICO plc, Honorary senior research fellow, UCL 

Education Committee

Angela Abell
Banking, Volunteer of Huntington’s Queensland Board, HDYO Ambassador, HD-CAB
Impacted by HD

Erika Brockhoff
Prenatal Genetic Counselor at Mount Sinai West (NY)
Impacted by HD

Marc Osborn
High School Teacher
Impacted by HD

Bhairavi Srinageshwar
Post-doctoral Research Associate, College of Medicine, Central Michigan University

Brittany Stowers
Student Studying Neuroscience and Psychology
Impacted by HD

Dr. Emma Yhnell
HD Researcher, Cardiff University, Wales, UK

Jessi Way
Masters of Science, Licensed Professional Counselor
Impacted by HD

Marketing Committee

Emily Hadley
Job Title: Retail Buyer, World of Sweets

Biographies

You can learn more about the HDYO Team on our biographies page.