HDYO Team
18 februari 2022

HDYO har mer information om HD för ungdomar, föräldrar och yrkesverksamma på vår webbplats:
www.hdyo.org
Staff
Our dedicated staff is made of passionate individuals who are here to help in any way we can. Please feel free to reach out to us directly.
Jenna Heilman
Executive Director
jenna@hdyo.org
Matt Ellison
Project Coordinator and Founder
matt@hdyo.org
Rebecca Mason
JOIN HD Study Coordinator, Juvenile Onset Huntington’s Disease Registry
rebecca@hdyo.org
Jenna Shea
Project Coordinator
jen@hdyo.org
Board
You can learn more about the board on our biographies page.
Hayley Hubberstey
Executive Board, European Chair
hayley@hdyo.org
Seth Rotberg
Advocacy Chair
seth.rotberg@hdyo.org
Rudolf H Schaffrath
Executive Board, Treasurer
rudolf.schaffrath@hdyo.org
Eric Miller
Executive Board, Corporate Fundraising
eric@hdyo.org
Dr. Bonnie Hennig-Trestman
Research Committee Co-chair
DrBonnie@hdyo.org
Dr. Lauren Byrne
Research Committee Co-chair
Impacted by HD
lauren@hdyo.org
Clare Braithwaite
Marketing Committee Chair
Impacted by HD
clare@hdyo.org
Donna Spencer
Education Committee Co-chair
Impacted by HD
donna@hdyo.org
Ashley Clarke
Education Committee Co-chair
Impacted by HD
ashley@hdyo.org
Jenny Harte
Marketing Committee
jenny@hdyo.org
Committee Members
Research Committee
Misty Daniel
Certified Clinical Research Coordinator, Scripps Health
Dr. Beth Ann Griffin
Senior Statistician, RAND Center for Causal Inference
Mustafa Mehkary
PhD Student, University of Toronto
Marina Papoutsi
Biomarker scientist, IXICO plc, Honorary senior research fellow, UCL
Education Committee
Angela Abell
Banking, Volunteer of Huntington’s Queensland Board, HDYO Ambassador, HD-CAB
Impacted by HD
Erika Brockhoff
Prenatal Genetic Counselor at Mount Sinai West (NY)
Impacted by HD
Marc Osborn
High School Teacher
Impacted by HD
Bhairavi Srinageshwar
Post-doctoral Research Associate, College of Medicine, Central Michigan University
Brittany Stowers
Student Studying Neuroscience and Psychology
Impacted by HD
Dr. Emma Yhnell
HD Researcher, Cardiff University, Wales, UK
Jessi Way
Masters of Science, Licensed Professional Counselor
Impacted by HD
Marketing Committee
Emily Hadley
Job Title: Retail Buyer, World of Sweets
Biographies
You can learn more about the HDYO Team on our biographies page.